North East Lincolnshire Council

Local and national support for SEN

Find out about the support and information available for special educational needs and local offer for children and young people in North East Lincolnshire.

You may ask “What is Parent Participation, and why is it important that it continues in North East Lincolnshire?”

Parent and carers can help pinpoint problems frequently experienced by families with disabled children. This knowledge is useful to professionals to help them improve how services are delivered, so they better fit family’s needs.

With successful parent participation both parents and professionals work together recognising each other’s specific knowledge and therefore informed decisions are made which make the best use of people’s time and money.

With cuts that are being made to services and money tight for those that survive, it is vitally important that local parent and carers get involved with crucial decisions being made to ensure that what money there is available is spent wisely to best benefit disabled children and their families.

The North East Lincolnshire Parent Participation Forum (NELPPF) is the local opportunity for parent/carer(s) to have their voices heard and help influence local decisions that may affect their families.

The Forum meet on a regular basis at the North East Lincolnshire Carers Centre, 1 Town Hall Square, Grimsby. All parents and carers are welcome. For further information contact us on the following.

Contact details

Facebook –

Twitter –

Website –

Email –

Telephone – 07583 474892

Contact names – Co-ordinator – Karen Hoe, Chair – Marie Fitzgerald

Who are we?

North East Lincolnshire Special Educational Needs and Disabilities information, advice and support service (NEL SENDIASS) is a parent partnership service funded by North East Lincolnshire local authority and Barnardo’s. Barnardo’s employ the staff and run the service.

What do we do?

NEL SENDIASS provides impartial information, advice and support on matters around special educational needs and disabilities (SEND). Support is provided on a range of topics, including:

  • provision in schools
  • assessment processes
  • conversion of statements to education, health and care plans (EHCP)
  • reviews
  • transitions
  • exclusions
  • transport
  • specialist provision/support services
  • appeals
  • local policies
  • SEND code of practice

Support may be provided on a 1-1 or group basis according to need.

Who is it for?

NEL SENDIASS is a free, impartial, and confidential service for parents and carers of children and young people (0 – 25) with additional needs. Children and young people with additional needs aged 0 – 25 years can also access the service for support in their own right.

How do I access it?

By contacting the service directly using the contact details provided below:

Telephone: 01472 355365

Address: Barnardo’s 11 Dudley Street, Grimsby, DN31 2AW



Office hours : Monday -Friday 8.30am -4.30pm

Resources and useful links

Discover the Children and Young People, Information, Advice and Support Services Network website:

We hope you find informative and entertaining! It contains lots of information about how our service can offer you support and guidance so that you can be involved and heard every step of the way!

You can read the Department for education’s handy guide, which explains the new SEND system for children and young people: SEND guide for children and young people (PDF)

You can also watch this video on YouTube, which explains how the new system will affect you: – Special Education Needs and Disability Support

Other useful Links

Coram Children’s Legal Centre

Department of Education


National IASS

North East Lincolnshire Parent Participation Forum (NELPPF)

Part One – About the SENDIASS service

Part Two – What is an Education, Health and Care Plan (EHCP)?

There are many services out there locally and nationally and it can seem overwhelming narrowing down the information. You can search the Family Information Service directory which contains information for our area about groups, activities, schools and more:

If you want more information you can get in touch with our Family Information Service by email at or by phone on 01472 326292 Option 1.

Address: The Old Waterworks Offices, 1 Town Hall Square, Grimsby DN31 1HY

Telephone: 01472 242277


Website: Carers’ Support Centre

A Carer is someone of any age who looks after a child, relative, partner or friend in need of help because they have an illness, disability, frailty or a substance misuse problem. The care they provide may be personal, emotional or supervisory and is unpaid.

The Carers’ Support Service is here to work with and support Carers in North East Lincolnshire.

Who do we support?

The Carers’ Support Service supports different groups of Carers:

  • Adult Carers – Adults caring for someone aged 18 or over
  • Young Adult Carers – Adults aged 18 to 25 who care for someone aged 18 or over
  • Young Carers – Carers under the age of 18 who care for a family member (parent, grandparent, sibling, etc.)
  • Parent Carers – Carers who provide for the additional needs of a child as a consequence of a disability or medical condition
  • Carers of someone with a substance misuse problem – Carers in this situation must be 18 or over to access support via the Carers’ Support Service

The Carers’ Support Service aims to meet the individual needs of a Carer that arise as a result of a caring role. All support via the Carers’ Support Service is available to all groups of Carers, with the exception of Young Carers.

The Carers’ Support Service works closely with the Young Carers Team within North East Lincolnshire Council. Together we ensure Young Carers are given the information, advice and support they need to reduce the impact of a Young Carers caring role. The Carers’ Support Service can register Young Carers and signpost directly to the Young Carers Team for an assessment. From age 16, Young Carers can also access specialist advice regarding benefits. To book an appointment give us a call on 01472 242277.

Carers Emergency Alert Card Leaflet (PDF)

How to access support for a child with additional needs

If you wish to know more about what support is available for a child or young person with additional needs, please contact our Children’s Disability Service (CDS) on 01472 326292, option 1.

If you have a concern about the welfare of safety of a child, please contact the Multi Agency Safeguarding Hub on 01472 325555.

The CDS will, like Family Information Services, provide you with information about Universal Services and more specialist groups that can offer support, without the need for an assessment.

North East Lincolnshire Council have an Eligibility Criteria to access certain services for which an Assessment is needed. CDS undertake assessments of need and parents/carers of children with disabilities can ask for an assessment if the Universal Services are unable to meet their needs.

Following the assessment, a support plan will be agreed with the child and family, this may include direct provision of services of a Direct Payment.

The CDS will review the Support Plan regularly with the emphasis being on promoting inclusion, meeting identified outcomes and support the family as a whole.

Contact details


Telephone: 01472 326292, option 1.

Opening times: Monday to Thursday 8.30 am to 5 pm and Friday 8.30 am to 4.30 pm, except bank holidays.

Enhancing your independence and confidence.

A brand new way to build a profile of yourself and carry it around with you on your smartphone, in case you need to quickly share this with people.

Designed by people on the autistic spectrum, the free mobile app can give you confidence and independence whilst in the community.

• Build a secure profile about you
• Share it visually face-to-face
• Access Social Scripts/Guides
• Log how you’re feeling
• Log your Emergency contacts
• Log things you might want people to be aware of
• Readily accessible in times of need on your smartphone
• Access online Autism Information, Guidance & Services

Read more about the app on the Focus adult social work website:

Download the App

My Autistic World is available from Apple App Store.

app store

For sleep tips for children with Special Educational Needs and Disabilities go to the Tired Out website.

There are lots of local and national support services out there but knowing where to start to look for help can feel overwhelming. We have put together support services for the most common enquiries we receive and to try help you find services quickly and easily we have split in to the following:

Financial Support

Caring for a child or young person with additional needs can mean you encounter more financial pressures. There is support out there, both locally and nationally.

Department for Education


Want to find out what others think about services? Contact a Family run SENDirect. An online service that allows families of children with additional needs to find, compare and buy activities, support and services. SENDirect aims to support families to find out what other people think of services.

The Humber Transforming Care Partnership (TCP), covering East Riding of Yorkshire, Hull and North East Lincolnshire, aims to ensure that individuals with diagnosed learning disabilities (LD) and autistic spectrum disorder (ASD) are supported within local communities, to avoid unnecessary in-patient mental health admissions.

The transforming care programme is a national priority that focusses on improving services for:

  • children and young people with learning disabilities, and
  • children and young people with autism, and
  • children and young people with both learning disabilities and autism

Who also have:

  • behaviours that challenge, or
  • a mental health condition

The aims of the programme are:

  • children, young people and families are supported to have a good quality of life – they are treated with respect and have an expectation of a home in their local community
  • children and young people should be kept safe but at the same time supported to take positive risks
  • children and young people should have choice and control over their lives
  • children and young people’s support should be provided in the least restrictive way
  • children and young people should get equal health outcomes to the rest of the population

We are committed to making sure that children and young people with a learning disability, autism or both have the right to the same opportunities as anyone else.

These include:

  • getting the support they need to live long and healthy lives
  • being treated with the same dignity and respect
  • having a home within their community
  • being able to develop and maintain relationships and
  • getting the support they need to live a healthy, safe and fulfilling life.

To do this we know that we need to make services in the community better.  This will mean that children and young people will be able to get their health care at home or near to where they live.

To monitor the care and support that children and young people are receiving, Care, Education and Treatment review (CETR) meetings are arranged. The reviews are arranged and chaired by the Clinical Commissioning Group or NHS England, with the individual and family members central to the review and any decision making and outcomes. The meetings are multi-agency person centred reviews attended by an independent clinical expert and an expert by experience to consider if there is a community alternative that would prevent admission into hospital or support discharge from hospital.

Care and Treatment reviews can be requested by any member of the care team or by family or the young person themselves if they have concerns about their care and treatment. Speak to your Young Minds Matter contact or mental health worker, social care contact or SEND officer if you have any questions about care and treatment reviews and how they are arranged. Professionals who are already involved with the young person may request a Care and Treatment Review, with your consent, if the multi-disciplinary team around the young person feels that the risk of a hospital admission is increasing.

The transforming care programme for children and young people has strong links with the Special Educational Needs and Disabilities (SEND) principles and agenda and a key role of the programme is to ensure that children and young people with learning difficulties and autism with behaviours that challenge or mental health conditions, leave school with a good education, health and care plan that supports their transition to adulthood leading to better outcomes for them and their families.

Family Information Service


Telephone: 01472 326292, option one

Opening times (telephone and email enquiries): Monday to Thursday 8.30 am to 5 pm and Friday 8.30 am to 4.30 pm except bank holidays